We have been weaning Arthur's Zonegran for
about a month. The neurologist said we could wean by 25mg a week.
But that seemed awfully fast.
He was on 100mg a day. First week we went to 75mg,
Second week we went to 50mg.
This may not seem fast to some people but it started to feel like.....
So, the Third week we stayed at 50mg
Two weeks at 50mg and there was no issues.....
But we can't forget, Arthur has never been seizure free on less than 100mg of Zonegran on top of his 3000mg/day of Keppra
So we are continuing in true, uncharted epilepsy territory
I feel like the man in the cave. I'm hopeful, yet so terrified
It feels like it could all come crashing down around us, lost in the abyss
OR
We will reach the light......
God, I hope we get there and stay there
The Fourth week we decreased to 25mg
We agreed on an extra week at 25mg like we did at 50mg
Just to play it safe
Only side effect we are noticing is insomnia
From what I read and was told, the side effects that he had with the Keppra before we
added the Zonegran, may re-appear
He did struggle with sleep before adding the Zonegran. But the neurologist feels it will only be temporary while the body adjusts.
We sure hope so. Arthur is a bit.......
Besides the insomnia, Arthur's wean is going well. This Saturday night will
be his last dose of Zonegran.
Please keep him in your thoughts and prayers
But that seemed awfully fast.
He was on 100mg a day. First week we went to 75mg,
Second week we went to 50mg.
This may not seem fast to some people but it started to feel like.....
So, the Third week we stayed at 50mg
Two weeks at 50mg and there was no issues.....
But we can't forget, Arthur has never been seizure free on less than 100mg of Zonegran on top of his 3000mg/day of Keppra
So we are continuing in true, uncharted epilepsy territory
It feels like it could all come crashing down around us, lost in the abyss
OR
We will reach the light......
God, I hope we get there and stay there
The Fourth week we decreased to 25mg
We agreed on an extra week at 25mg like we did at 50mg
Just to play it safe
Only side effect we are noticing is insomnia
From what I read and was told, the side effects that he had with the Keppra before we
added the Zonegran, may re-appear
He did struggle with sleep before adding the Zonegran. But the neurologist feels it will only be temporary while the body adjusts.
We sure hope so. Arthur is a bit.......
Besides the insomnia, Arthur's wean is going well. This Saturday night will
be his last dose of Zonegran.
Please keep him in your thoughts and prayers
