Trileptal

The seizures seemed to decrease for a little while.

His teacher noticed he stopped "swinging his hair a lot."

( Not Arthur)

That didn't last.

The seizures began to increase in frequency.

He began struggling in school even more.

This neurologist didn't want to restart his Concerta ( for ADD) until his seizures were under control.

All the while my poor child is struggling with seizures and his ability to focus.

The doctor increased the dose a few times.
Never repeated the EEG.

Over the next few months she really didn't seem over concerned.

With that, we were DONE!!!!!

On to Doctor number 3............

Doctor #2

So after the event at school and Doctor #1
 we decided to move back home to

the West Coast.

Of course that meant finding all new doctors.

For quite a while, Arthur seemed ok.

He would occasionally complain of the funny feeling and get a headache and then 

need to sleep.

It happened a couple of times over the summer but seemed to stay at bay for the most part.

Of course I kept getting told it sounded like migraines.

Finally I got the referral to see a neurologist. I wouldn't say I loved her, but finally

someone agreed with me. She said it did sound like seizures.

An EEG was ordered.

We went for his first sleep deprived EEG. Staying up late sounds fun at first.

Really it's not, especially when you have to get up extra early the next day.

Everything went well.

A week later. I had to call the doctor myself for the results.

He for sure had

EPILEPSY

It was quite a blow. I think being a nurse didn't help. I know just enough to freak myself out.

Then, I believe, they labeled it as simple partial seizures.

He would have the "funny feeling," and usually go into a slight stupor. Sometimes wandering off. Then 

complain of a headache and need to sleep.

So he was started on 

Trileptal(oxcarbazepine)

"Oxcarbazepine is used alone or in combination with other medications to control certain types of seizures. Oxcarbazepine is in a class of medications called anticonvulsants. It works by decreasing abnormal electrical activity in the brain."