This is more of a vent.......
Being the parent of a child with 'extra' health concerns
is exhausting.
Most days I take it in stride. This is part of our life.
I take care of all the details
............................
Appointments
Specialists
Medication
Refills
Insurance
Diet
School
IEP's
Heart Disease
Epilepsy
ADD
An example of a regular day?
Between 615am and 715am:
Make sure he got up with his alarm
Breakfast, lunch packed.
Make sure he takes his meds
Make sure his medical ID bracelet on
During that I'm getting my younger one ready too.
Until 3pm......
Chores, errands and such
If I'm lucky
calls to old hospitals to get records that were suppose
to be mailed weeks ago
Make more appointments
Find a new primary doctor cause are new one SUCKS
Then there's that part of my brain that always worries. Will the school call today?
That siren I just heard, is it going to his school?
Everyday, I have to remind myself to breathe
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Once the kids are home......
Chores and a little down time
Try to help Arthur study for a couple tests he has the next day
ADD and homework = NO FUN
Meds at 5pm, Meds at bedtime
Lights out 9pm
Make sure he is still breathing before I go to bed
~~~~~~~~~~~~~~~~
From an outside perspective it may not seem like a lot
But this is everyday
Some days are worse then others
I worry if I hear a loud boom
I worry if the dog howls in the middle of the night
I worry if his showers take too long
I worry if he stares off for a second to long
I worry if he is not home from school at the exact same time everyday
Is he ok? Did he have a seizure?
I WORRY CONSTANTLY
As our family has learned to deal with epilepsy in our everyday.
Deal with all the issues and what comes with them.
We truly have learned to take the good with the bad
We have learned to not let it control our life
But some days, like yesterday
it all becomes too much
the stress and the worry....
It eats at my heart and feels like an unbearable weight
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