Thursday, August 23, 2012

Is the funny feeling returning?????

Last week  I was awoken by a phone call from the school.
I work night shift, so I sleep a good majority of my days.
Then being the first week back at school, that
was NOT what I wanted to see on my caller ID.

It's the school nurse.
She says," Arthur thinks he had a little seizure so he came to see me. I will let you talk to him"
I ask my son whats going on.
He tells me that he got the "funny feeling."

-If you have read towards the beginning of this blog, you know that was usually a sign
that a complex partial was coming.
Now we think that even when the feeling didn't amount to much it was still a small seizure.-

Arthur said he was worried so he went to the nurse. Good kid.
He didn't have a headache and it seemed to have passed and not turn into anything more.
THANK GOD!!
I was so proud that he acted  so quickly and calmly.
He was fine and he did have to go back to class.

Part of me thinks.....was he just trying to get out of school?
New school in the 7th grade is no doubt hard.

OR

Is this the slow return of the monster????


So I try not to worry....ha ha ha ha
AND
Since he has been doing SO well for over 3months( knock on wood,)
the new Neuro is in no rush to see him.
UGH
Not till September to be exact


So I keep praying that the one day of  "the funny feeling," was
just mistaken nerves.
But we keep on vigilant watch

Friday, August 3, 2012

Your always on ALERT!

We have been at our new home about a month now. So far, we just love it.
We are all getting settled in and the kids start school
next week!!!
In the state we are now in they start in August.
The kids are not as excited since they just got out of school the
end of June. Such is life!



Why I titled this post " Your always on ALERT," is because
of what I experienced today.
Let me start by saying Arthur is 3 MONTHS seizure free TODAY!!
As wonderful as that is it doesn't remove the fear that I feel always lurks
in my heart.

I was at the gym riding the bike. The bikes at our gym face a window that overlooks
the indoor and outdoor pool.
So I am "riding" along and I notice in the outdoor pool someone is floating face down.
Another minute or two passes and the person is still floating like that.
But I take notice to the fact that this person appears stiff like a board.
Arms straight above the head, legs straight out.
THEN.....
I see the lifeguard running into the water to this person.
My heart sank
What did I immediately think? Yup.
Seizure.
Maybe this person is having a seizure. It sure looked like it. What if
these  pool lifeguards don't recognize that?
So what did I do?
I stopped, gather my things and quickly walked all the way down and out
to the outside pool.
My heart is racing. Maybe I can help.

As I walk up this person is on the ground with several life guards around. They are
about to start CPR. That's when I noticed it. They are counting out loud like they
are doing chest compressions but they are not actually pushing on the chest.

IT WAS A DRILL!!!!

Sheesh.

I'm glad they train their life guards well. But I could have done without the heart attack.
It wasn't even someone I knew. It wasn't even real.
But it effected me for a while after. Kind of  choked me up.


Arthur is doing well right now. Very well. But the memories of the bad times never
go away. The fear, the uncertainty of epilepsy. It never leaves us.
It resurfaces on days like today.


My heart is with each and everyone one of you out there.