Monday, April 22, 2013

Just when you think all is ok.......

The "funny feeling"
has
returned


Once epilepsy entered our lives we realized
the "funny feeling" that
Arthur complained about for months leading up to
his first seizure
was in fact.....an aura

Once he started having complex partials and mentioned
the "feeling"
a seizure was coming

Well lets fast forward................to today

Arthur started to complain of it over a month ago.
But there was no seizures
Just the "feeling"

I tried not to worry, he had recently started  Strattera.
Maybe it was that?


I called the neuro and she wanted to try and decrease the Strattera
dose a tad.
Down to 60mg from 80mg. Give it at least a week

A week or so later.......

Arthur said his stomach wasn't as upset as before
But....
he kept getting the "funny feeling"

Great....


So I call the neurologist again.....


She says----
" It's sounds like his meds are working but barely hanging on, hence why
he is starting to get the 'funny feeling' again "



He will seizure free for 1 YEAR in May...... 1YEAR
and now
1 month before he hits that mark
IT
RETURNS?!?!

I am trying sooooooo hard to not let it worry me.
But my heart is hanging by a thread before it lives in my stomach

So the Doc increased his Zonsimide by 50mg.
Another pill
My poor kid

No kid should have this

Hopefully all he needed was a little medication increase.

But I'm worried the E beast will
never go away.
That the meds just keep it dormant
That he will never "outgrow" this