When they talk about it...

I was talking to my son the other day....... He is now 14yrs old.

Taller than me and has been seizure free for 19 months!

(knock on wood)

He brought up that he was still having trouble focusing in school.

He currently takes Strattera for ADD

I told him we could speak with his Neurologist but that I doubt

she would change him to a stimulant, like Concerta

That she felt, a stimulant like Concerta could

bring on his seizures again

Then he just started talking about his seizures......

this is not something he does very often

He said, " I don't want to have any seizures, but

I don't worry about it like I used to. I used to

think about it constantly. I was always 

worried when I would have another one. I couldn't

focus at all.......

But now, I don't worry about it at all..."

Now he said, he struggles to focus just cause.

It just about broke my heart to think about how much

anxiety he was living with back then.

He was only 10/11yrs old

To be that scared all the time

I can not imagine living with that

To think how much he has overcome 

What an amazing kid

1 in 26



Approximately 1 in 26 People in the United States Will Develop Epilepsy at Some Point in their Lifetime

      Epilepsy is a chronic condition of the brain that affects people all over the world. It is characterized by recurring seizures-- which are physical reactions to sudden, brief, excessive electrical discharges in brain cells. Anyone, anywhere, at any time can have a seizure.

     The physical reactions of a seizure depend on which part and how much of the brain is impacted by the excessive electrical discharges. Although most people think of a seizure as a full-body convulsion, seizures can also be brief muscle jerks or unconscious behaviors like picking at clothing or what appears to be a lapse of attention, like daydreaming.

    The frequency of seizures varies greatly, from once in a while to several per day.

    More people live with epilepsy than with autism spectrum disorders, Parkinson's disease, multiple sclerosis and cerebral palsy – combined.

     Epilepsy is one of the world's oldest known medical conditions, and yet too many people do not understand it. In too many cases, this misunderstanding has led to fear, discrimination and social isolation.
    Together, we can reduce the fear and misunderstanding, so the lives of millions of people around the world -- people living with the condition and their loved ones -- will be forever changed for the better.

Epilepsy Stats

65 MILLION: Number of people around the world who have epilepsy.

OVER 2 MILLION: Number of people in the United States who have epilepsy.

1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.

BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time. 

150,000: Number of new cases of epilepsy in the United States each year

ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.

6 OUT OF 10: Number of people with epilepsy where the cause is unknown

Did you know that more people die every year from epilepsy and related causes than from Breast Cancer???

Yet, epilepsy doesn't get even half the amount of funding and awareness.

Breast Cancer is a very important cause, no doubt.

But how much Pink do you see vs. Purple????

We need to find a way to change that