Saturday, April 28, 2012

SUDEP

I wanted to post all the research I could find about SUDEP.  
Sudden Unexplained Death in Epilepsy



 But, honestly, this is a hard thing to write about and I just can not
let it consume my thoughts too much. So here's a bit of info and a
website to check out.--------------------->



People, not just parents need to be aware of this. We have
seen FOUR neurologists and not one has mentioned it.
Why? My guess? 
It's scary. Really scary.





 As if I don't worry enough, right? 



The cause of SUDEP is unknown.
 It usually happens during sleep. 
 The biggest known risk factor is having frequent 
Grand Mal seizures.  
 Many people die every year  

 The estimates
say 1,000 people with epilepsy die from SUDEP every year. In 
people with uncontrolled, difficult to treat  seizures the rates
have been reported as high as 1 in 100  per year.





I read a statistic somewhere in my research, a statistic
that makes me even more sick
to my stomach.

SUDEP rates seem to be the highest in males 12-15yrs old
( #$%&*@^%!!!!!!!)

If you or someone you love has epilepsy, be aware.
SUDEP can strike without warning. It does not
discriminate.

www.sudepaware.org

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