As a parent that lives with a heavy heart

I think about it a lot.

Being a parent of a child with heart problems and epilepsy.

To all the parents who deal with any problem that children should never know.

Recently, my son has complained of being really tired. With the meds he

takes for epilepsy and the age he is. You could really think its nothing.

My son was born with a major heart problem, 

(see past posts)

They told us that when he hit puberty that we may see problems,

He may need more surgery.

He may grow faster then his heart can keep up with.

We have always known

They, the docs, always said he will be become very tired.
When the day starts becoming reality.

So is it his age? His heart? His epilepsy meds?

I really try to not over think all of it. It can be really hard not to at times.
Thankfully he sees the new Neuro this week and the Cardio in October.
He wasn't due for his yearly cardiac appointment ( just had it in May,) but with us
just moving I wanted to have set up a new one.
So it kind of works out.

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