Did I have childhood epilepsy??? Genetics revisited...

It's funny how certain images, sounds, even smells trigger memories.

I was at work the other night.

I am not really sure what triggered this memory.

But it really has me thinking.

When I was in elementary school.

(ha ha)

I was probably 10/11years old and I had these "episodes."

From what I remember I had two.

The first one I wasn't feeling well, so

 I went into the bathroom and I remember starting to black out.

Then sometime later waking up in the bathroom, on the floor.

Of course I got in trouble cause I was in the bathroom too long. Oh teachers :)

The other time, it happened in class at my desk. I just went "out."

 I woke up to the other students giggling cause I had wet my pants.

I remember being so confused as to what happened.

So embarrassed.

At the time I recall being told it was probably just low blood sugar and to make

sure I ate better snacks.

That was it.

I think something similar may have happened in Junior high, but I don't recall the specifics.

What's so crazy is after all the stuff we have gone through with Arthur, these memories had

never come into my head until now.

We have never gotten any explanation as to why Arthur has epilepsy.

They cant even pinpoint the area the seizures come from.

We just hear the left temporal lobe, "mainly."

Might as well just use this.....

A while back we found out a distant relative on my husbands side had epilepsy. But,

of course no one talks to him anymore or even knows where he is. Super.

So any thought of searching our genetics was kinda mute.

Then, out of the blue. These memories of my childhood came into my head.

Have I been the link this whole time???

Is there any way to know if seizures is what those episodes were??

So many questions in my head....

New Neurologist and still seizure FREE!!!!

We finally got to see the new neurologist.

My son didn't need anything, per say...

cause he has been seizure free for over 4 MONTHS!!!

Yes. I said it, FOUR MONTHS!!!!!!!!!!

(knock on wood)

We just recently moved and needed to establish a relationship with a new Doc.

I had researched him. He was nice.

But what was wrong with him you ask?

As I explained how Arthur's Complex-Partial seizures present, he said

"that's not a typical seizure."

Uh what????

He didn't really just say that did he???

As we continued to talk he still seemed somewhat confused. Not exactly

the reassuring appointment I hoped for.

But he did refer Arthur to have Neuro-psychological testing before I even

brought it up. ( Point for new Doc!)

He did a very thorough exam and saw no need to change any

of Arthur's meds since he has been doing so well.

He was patient and answered all my questions.

I am giving him the benefit of the doubt for now. Hopefully his lack

of knowledge on complex partial seizures is just based on the fact

that he is a newer doctor.

He will do for now.

Cause let's be honest, if something changes and I don't trust this Doc.
I'll just find a new one :)

Stats as of today: Arthur 13yrs old

110 pds, 5'4

Keppra 3000mg/day (1500mg 2xday)

Zonegran 100mg 1xday

As a parent that lives with a heavy heart

I think about it a lot.

Being a parent of a child with heart problems and epilepsy.

To all the parents who deal with any problem that children should never know.

Recently, my son has complained of being really tired. With the meds he

takes for epilepsy and the age he is. You could really think its nothing.

My son was born with a major heart problem, 

(see past posts)

They told us that when he hit puberty that we may see problems,

He may need more surgery.

He may grow faster then his heart can keep up with.

We have always known

They, the docs, always said he will be become very tired.
When the day starts becoming reality.

So is it his age? His heart? His epilepsy meds?

I really try to not over think all of it. It can be really hard not to at times.
Thankfully he sees the new Neuro this week and the Cardio in October.
He wasn't due for his yearly cardiac appointment ( just had it in May,) but with us
just moving I wanted to have set up a new one.
So it kind of works out.

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