The "funny feeling"
has
returned
Once epilepsy entered our lives we realized
the "funny feeling" that
Arthur complained about for months leading up to
his first seizure
was in fact.....an aura
Once he started having complex partials and mentioned
the "feeling"
a seizure was coming
Well lets fast forward................to today
Arthur started to complain of it over a month ago.
But there was no seizures
Just the "feeling"
I tried not to worry, he had recently started Strattera.
Maybe it was that?
I called the neuro and she wanted to try and decrease the Strattera
dose a tad.
Down to 60mg from 80mg. Give it at least a week
A week or so later.......
Arthur said his stomach wasn't as upset as before
But....
he kept getting the "funny feeling"
Great....
So I call the neurologist again.....
She says----
" It's sounds like his meds are working but barely hanging on, hence why
he is starting to get the 'funny feeling' again "
He will seizure free for 1 YEAR in May...... 1YEAR
and now
1 month before he hits that mark
IT
RETURNS?!?!
I am trying sooooooo hard to not let it worry me.
But my heart is hanging by a thread before it lives in my stomach
So the Doc increased his Zonsimide by 50mg.
Another pill
My poor kid
No kid should have this
Hopefully all he needed was a little medication increase.
But I'm worried the E beast will
never go away.
That the meds just keep it dormant
That he will never "outgrow" this
Hopefully all he needed was a little medication increase.
But I'm worried the E beast will
never go away.
That the meds just keep it dormant
That he will never "outgrow" this
Don't believe that at all. Don't even speak it. I will be praying for your son to have no more seizures. Bc I know God doesn't won't this for our children and its the devil taking a hold of them and I am not going to accept that my son is going to have seizures all his life and you shouldn't either we have to fight for our children through prayer. Keep the faith and our sons will be fine I know they will. :)
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