Mother's Day- in the hospital

Well no seizures = no going home. BOO. So we sit and wait. Having a child with epilepsy is like living with a ticking time bomb. The fear, the uncertainty of when the next "bomb" will go off. It's a rough way to live. Sadly a way of life we become accustom to. You never get used to it, you just learn how to deal with a little better as time goes on. ....... So I sit here waiting for the next "bomb." At least Monday brings back the neurologist and not the countless internists, neuro fellows, residents etc that are "covering" for the weekend. Granted all those people will still be around but the people that know what the heck is going on can maybe give us some answers. 

I asked one of them yesterday about the PET scan and it was like dear in the head lights......granted as a nurse that works with residents and fellows, watching them squirm a little is kinda funny.............

 Like yesterday, one of the pediatric residents was telling me how my sons heart sounds great, no murmur..etc. ( my son who had open heart surgery, my son with the murmur you can feel by touch)

 I looked at her with a little smile and said, 

" are you sure ? he had transposition." Then comes the...uh uh uh.

 Yeah maybe it's kinda mean, but I was nicely passive aggressive. Ha ha. .............

 Mothers Day was nice tho. The staff didn't bug us at 7am, meaning we slept till almost 9!! Can I get whoop whoop! My hubby and daughter came and brought me a couple gifts and spent the day with us. The Child Life staff had a little brunch and my daughter and I went upstairs and played. Then her and I walked to the nearby shopping area for some fresh air. I'm not normally a Coffee Bean gal but the coffee I got today was fabulous! It's the little things you know? Like also getting to snuggle with my hubby :) Its amazing how well you fit on a little fold out bed when you barely get to see each other. I love him more then words can express.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ *I apologize for the format of these past few posts. For some reason in the hospital via an IPad, I get no control on format and I can't add pictures. * HOPE EVERYONE HAD A WONDERFUL MOTHERS DAY